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Even With ALS

Garmt was experiencing ALS – so you don’t have to!

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Latest post

All the Small Things (for Josh and Myra)

20/07/2016/in English /by garmt

Hi! I’m here to whack some truth upside your head. My truth, that is, and to be perfectly clear I’ll quote you some obscure zen saying: something true isn’t unless its opposite is also true. Chew that. Ah, you are looking confused, you must be a fast learner. Me, I was too stubborn for years to get confused, that way you learn nothing. So, small things. That’s what I’ll talk about today. ‘cos You, dear reader, might totally have the wrong idea. Just like blink-182 (all lowercase, yes, because they figured that that once was cool), whose only hit titles this post, whatever it was, they didn’t get it. Check their lyrics if you need proof. What they díd get was how to perform All the Small Things live at the VMA, with twenty dwarfs.

So, small things. Enjoying the little things. Laughing with your daughter about a raspberry, or enjoying the shade of a!some trees and a cool breeze together with a friend on a hot day. Listening together to a song, reproduced by appalingly expensive loudspeakers. Being content with a small box of raisins, like Zoe, or being content with the last mignardise at the end of a sublime nine course dinner, like me. Your very first paycheck, earned by working on the land when you were fifteen, or the very first investment of the ALS Investment Fund, that you have dreamed of and worked on since you were 36. Blowing a dandelion puff ball.
I don’t see any difference in size between these examples. Do you? I’m guessing that most readers would file “laughing with your daughter” under “enjoying the small things in life”, and a megalomaniac dream of A HUNDERD MILLION €’s not. To start with the obvious mistake: how can playing with your child EVER be a small thing?! She is the most important thing in your life, playing with her is the icing on the cake, the cherry on top, the dog’s bollocks, after you changed her diaper for the tenth time today, and after she emptied her cup on your back as you were kneeling to clean her dinner from the floor and after she kept whining and whining until you almost went crazy and after she kept you up all night and … etc. Or worse, that you had to watch someone else doing that all day, because they can, and you’re paralyzed.
Small things in life are small like the top brick of the Pyramid of Cheops is small. I don’t consider giving Zoë the bottle a small thing, because I am conscious of  the enormous pyramid that this moment is the top brick of. All the little events I mentioned have that in common; huge things, each a pyramid of its own, even the dandelion. Some pyramids are more visible to the naked eye than others, which causes unsuspecting viewers to think of one thing as a small thing and another as a Big Thing. Watch closely, the next time you blow out a dandelion. Do you see the sun and the rain that raised it? The millions of years of evolution that led to exactly this specific piece of DNA? The factors that brought you here, at this perfect moment, at this exact spot, to aid this dandelion in its procreation as you breathe its seeds onto the wind?
If if you see all that, then you see that an investment fund isn’t bigger or smaller !than a dandelion. Then, you finally understand: happiness is found in really big things.
http://evenwithals.com/wp-content/uploads/2016/08/even-with-als-logo-300x117.png 0 0 garmt http://evenwithals.com/wp-content/uploads/2016/08/even-with-als-logo-300x117.png garmt2016-07-20 17:17:182016-08-07 17:37:57All the Small Things (for Josh and Myra)
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Click to buy!

So here’s the book:

EVEN WITH ALS

(yes it’s all caps!)

Garmt van Soests first book. Part two will follow, later.

EVEN WITH ALS is the overhauled, revised, spellchecked collection of his blogposts. Furnished with more than a hundred footnotes, a foreword, epilogue and an extra appendix. Garmt curses, raves, fights, wins, sighs, cries, breaks, listens, sees, feels and shares. With powerful language and words that strike home, the book expertly punches you in the gut.

So get a move on. With a few simple clicks of a button, a piece of cake for those without ALS, the brand-new book will be making eyes at you from your mailbox in no time.

Convinced? Click here to buy it
Not a fan of paper? Read it all online, here!
I have the book, show me the extra content already.

Voor wie is het boek?

Het boek is uiteraard voor wie gewoonweg geen genoeg krijgt van zijn blog, maar ook voor hen die onder een steen geleefd hebben en pas net op de hoogte zijn van het feit dat er überhaupt zoiets bestaat als de blog van Garmt. Het is ook voor een ieder die inmiddels een muisarm heeft ontwikkeld van het vele doorklikken op de website en natuurlijk voor de vrienden van de oude stempel, die het ouderwets geil vinden om een potje aan ècht papier te snuffelen tijdens het lezen.

ALS DAN TOCH is voor iedereen die Garmt en de stichting ALS een warm hart toedraagt. Want uiteraard gaat de uitgeversopbrengst van het boek naar de stichting ALS. Vooruit, en de royalties gaan naar dochter Zoë. Dus je doet met het kopen van het boek niet alleen jezelf of je moeder een groot plezier, maar maakt tegelijkertijd de wereld een klein beetje mooier.

Win-win.

Zijn beschrijvingen zijn scherp. Geestig. En eerlijk.

Volkskrant

“...wrange humor en stoere vechtlust…”

Algemeen Dagblad

"Een boek waar alles inzit."

Jeroen Pauw

dadablblblblrrrr, die!!!!!??!

Zoe L. van Soest

Join the fight

Hello, dear reader. ALS is currently incurable, but I’ll be fucked if I’m taking this lying down. I’m also trying to be realistic about this, but still, a bit of a battle does a person good every now and then. The fight I’m fighting is summed up pretty neatly here in this video (februari 2014).

There are a few ways you can help out with a small donation:

232Km in 2016

Sponsor James Faust as he participates in 4 races in 4 countries to raise money toward research.

While I swim, bike, and run, you can show your support by donating.

Project Mine

The biggest genome research project known to date. My biggest bet that we’ll find the cause. Once that is known, we at least know what we’re shooting for.

Stichting ALS

Of course, the big constant factor is the Dutch Stichting ALS; they welcome your annual donation; small or big.

Your idea here?

Are you swimming, cooking, cycling or walking against als? do you know someone who is a millionaire and wants to make money? Mail to info@qurit.org or press the button.

Sponsor James Faust
Visit Project Mine
Visit Stichting ALS
Contact Me

My friend who’s really on top of the fight is Bernardus Muller and you can find him on https://twitter.com/BernardusMuller. His twitter feed is the best place to hear what’s going on with ALS. If anything can be done or if we or someone else have managed to achieve something, you’ll hear about it from him first.

Follow the latest updates on ALS

Who?

Garmt van Soest

Garmt van Soest is a versatile manager with a strong background in business strategy and technology. He has advised Fortune 500 companies in the US and Europe since 2000. Garmt joined Accenture in 2010 as a Senior Manager in Strategy where he has been leading engagements in different industries, solving complex problems, advising on strategic direction setting and leading organizational transformation programs. Since his diagnosis with ALS his full-time job is to fight this disease with everything he and Accenture can muster.

Do you have ALS yourself? Click here!

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