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Even With ALS

Garmt was experiencing ALS – so you don’t have to!

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Made from paper. Tangible, flammable, wow!

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Latest post

Driver’s Seat

13/04/2014/in English, Updates /by garmt

The BMW 3-series. I do not use the words "masterpiece of engineering" lightly, but I am convinced that any German engineer with skill and ambition desires no greater legacy than to have contributed to the magnificence of this car. Fuck Ferrari's that break down and need a 10-thousand euro service every 3500km. Dominic drove his 320d for the first 80.000km without ever having to stop. OK, maybe he got gas a few times, but it was a diesel engine, so probably only twice. Let me share you some real facts about how this car is conceived. Every single material that is considered for the interior gets heated in an oven and smelled by super sensitive noses for unpleasant odour – you don't want your car to smell in the summertime. When a new prototype is done, they drive it to the top of Finland, leave it out in the snow for a day, start it up, and if the windows are not completely fog free within 90 seconds, they fire the guy who designed an inefficient air duct. Even when it breaks it doesn't break. This spring, in our 325, we had ignored a warning light for four weeks. That light was trying to tell us we were driving around with a punctured tire. For four weeks. Doing 200km/h with a pregnant woman behind the wheel in Germany. With a punctured tire. I could bore you with pages of ranting about the engine – the sound a straight-six makes… You get it. I love this car. I've had six 3-series + a 5-series (my first car!) + a Z4 (to great enthusiasm of the cop who fined me before I had ALS). It is the ultimate driving machine and I think it is made for steep, sharp-cornered hill roads on Greek islands. A local is driving it just ahead of us. He knows the road and glides across it like a metaphor by a very good writer would. God, I wish I was driving that car. But.

 

The Hyundai i10. I know next to nothing about this car so I have to speculate: it's engine is 3 angry chipmunks and a happy squirrel. You don't sit in it as much as wear it like a backpack. The break pedal is a sponge pressed against the wheel. Sneeze in this car and you risk turning it into a convertible, that's how flimsy it feels. In a delusion of efficiency, the youngest Korean intern designed the numberplate as bumper and crumple zone in one. Hertz employees need counseling each time someone returns one as it means they're still stuck with it. Cliniclowns at their wits end with always get a laugh, no matter how ill the child, by confessing they drive a Hyundai i10.

 

Right now, I could pulverize granite with the force my butt cheeks exert on each other. That's how tightly clenched together they are. I look to my left expecting to see a maniac, a monster, a lunatic behind the wheel of our rented Hyundai i10, it's simply not possible that the sweet, lovely, peace-loving girl I married has suddenly turned suicidal. No person in his sane mind would drive like this. Each corner we screech 2-wheeled makes me wonder if I should be religious; each minute we survive, still tailing the BMW, proves that DIVINE INTERVENTION exists. I mumble a prayer, a mantra and a koan at the same time and breathe deeply.

 

Iris, completely at ease and enjoying the ride, looks at me and asks: "am I going too fast, dear?". I ponder my options; answering a pregnant tige… I mean woman is always tricky. I settle for: "n… n… noofcoursenot".

 

"Good, because that BMW is driving me crazy".

 

She moves to overtake it and I seek diversion in existential dread. What happened? I'm going to die, will I leave nothing behind? Where did she learn to drive like this? What fucking lunatic ever gave her the idea that you can do this with a car? And then, just as we swerve back into our lane, our front bumper missing the oncoming truck by inches and our back bumper missing the BMW by millimetres, epiphany hits me: I have a legacy, and it is Iris' driving style. I'm sniff 'n the tears, all right.

http://evenwithals.com/wp-content/uploads/2016/08/even-with-als-logo-300x117.png 0 0 garmt http://evenwithals.com/wp-content/uploads/2016/08/even-with-als-logo-300x117.png garmt2014-04-13 13:59:222014-04-13 13:59:22Driver's Seat
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Full story

Click to buy!

So here’s the book:

EVEN WITH ALS

(yes it’s all caps!)

Garmt van Soests first book. Part two will follow, later.

EVEN WITH ALS is the overhauled, revised, spellchecked collection of his blogposts. Furnished with more than a hundred footnotes, a foreword, epilogue and an extra appendix. Garmt curses, raves, fights, wins, sighs, cries, breaks, listens, sees, feels and shares. With powerful language and words that strike home, the book expertly punches you in the gut.

So get a move on. With a few simple clicks of a button, a piece of cake for those without ALS, the brand-new book will be making eyes at you from your mailbox in no time.

Convinced? Click here to buy it
Not a fan of paper? Read it all online, here!
I have the book, show me the extra content already.

Voor wie is het boek?

Het boek is uiteraard voor wie gewoonweg geen genoeg krijgt van zijn blog, maar ook voor hen die onder een steen geleefd hebben en pas net op de hoogte zijn van het feit dat er überhaupt zoiets bestaat als de blog van Garmt. Het is ook voor een ieder die inmiddels een muisarm heeft ontwikkeld van het vele doorklikken op de website en natuurlijk voor de vrienden van de oude stempel, die het ouderwets geil vinden om een potje aan ècht papier te snuffelen tijdens het lezen.

ALS DAN TOCH is voor iedereen die Garmt en de stichting ALS een warm hart toedraagt. Want uiteraard gaat de uitgeversopbrengst van het boek naar de stichting ALS. Vooruit, en de royalties gaan naar dochter Zoë. Dus je doet met het kopen van het boek niet alleen jezelf of je moeder een groot plezier, maar maakt tegelijkertijd de wereld een klein beetje mooier.

Win-win.

Zijn beschrijvingen zijn scherp. Geestig. En eerlijk.

Volkskrant

“...wrange humor en stoere vechtlust…”

Algemeen Dagblad

"Een boek waar alles inzit."

Jeroen Pauw

dadablblblblrrrr, die!!!!!??!

Zoe L. van Soest

Join the fight

Hello, dear reader. ALS is currently incurable, but I’ll be fucked if I’m taking this lying down. I’m also trying to be realistic about this, but still, a bit of a battle does a person good every now and then. The fight I’m fighting is summed up pretty neatly here in this video (februari 2014).

There are a few ways you can help out with a small donation:

232Km in 2016

Sponsor James Faust as he participates in 4 races in 4 countries to raise money toward research.

While I swim, bike, and run, you can show your support by donating.

Project Mine

The biggest genome research project known to date. My biggest bet that we’ll find the cause. Once that is known, we at least know what we’re shooting for.

Stichting ALS

Of course, the big constant factor is the Dutch Stichting ALS; they welcome your annual donation; small or big.

Your idea here?

Are you swimming, cooking, cycling or walking against als? do you know someone who is a millionaire and wants to make money? Mail to info@qurit.org or press the button.

Sponsor James Faust
Visit Project Mine
Visit Stichting ALS
Contact Me

My friend who’s really on top of the fight is Bernardus Muller and you can find him on https://twitter.com/BernardusMuller. His twitter feed is the best place to hear what’s going on with ALS. If anything can be done or if we or someone else have managed to achieve something, you’ll hear about it from him first.

Follow the latest updates on ALS

Who?

Garmt van Soest

Garmt van Soest is a versatile manager with a strong background in business strategy and technology. He has advised Fortune 500 companies in the US and Europe since 2000. Garmt joined Accenture in 2010 as a Senior Manager in Strategy where he has been leading engagements in different industries, solving complex problems, advising on strategic direction setting and leading organizational transformation programs. Since his diagnosis with ALS his full-time job is to fight this disease with everything he and Accenture can muster.

Do you have ALS yourself? Click here!

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