Even WIth ALS
  • Home
  • Blog
    • Latest post
    • All posts
  • Book
  • Join the fight
  • Whowhatwhy
  • Search
  • Menu

Even With ALS

Garmt was experiencing ALS – so you don’t have to!

Blog

Garmts latest stories

Book

Made from paper. Tangible, flammable, wow!

Join the fight

Kick ALS in the balls, join!

Whowhatwhy

Who am I and all things miscellaneous

Do you have ALS yourself? Click here!

Latest post

Tattoo stories part three

21/04/2015/in English, Updates /by garmt

My first one was just the desire for a reminder that I was once the type of person that would get one.I was the first of all my friends to get one, my sister was the only other person I knew who had one. Nowadays, one in four people gets one. 

This is the story of my latest and last tattoo. It should be the story, actually, of the first time Iris and myself went to get a tattoo, but that is mostly her story to tell, and besides, her part of this story is way, way more interesting and beautiful, and I am an attention whore, so. 
 
I rationalized meaning into the shape of that first tattoo after I got it, because when people asked me why I had one or what it meant the real answer (I just got it to remind myself of who I want to remain, and it looks cool, I think) didn’t seem pleasing enough, not deep enough, not visual enough to pass the judgment of the asker. If I had a good story behind it, people were easier to approve of it.
 
My second tattoo had to be bigger than the first, of course, if only because the ex-boyfriend of my then-girlfriend just had a huge one done that I envied for balls and style. I had known the spot where it was going to be for years: upper left side on my ribcage, near my heart, because the first one was on an arm, which would metaphoriphysicalesoterically bring balance to the Force (muscles, arm) and my feelings (heart). Yeah, I know, I should have kept that thought where it has always been, inside.s The thought upon which the tatttoo was based was not half bad, though, witness the brief exchange I had in the tattoo shop:
(to girl behind counter) “Hi, I would like to get a tattoo, please?”
(girl, bored) “Where?”
(me) “On my ribs, here”
(she, wide eyed, audible gasp) “omgwtfREALLY?? In that case I am going to watch. So painful!”
…
(tattoo artist) “So how can I forever mutilate a part of the corpus that God gave you?”
(me) “So, just, um something to help me live in the present, I’m always thinking about the past or the future. I want to enjoy the now more.”
The tattoo dude probably had as little notion as I did, that I was in fact describing zen (I wouldn’t start practicing that before another three years). Good thing, or I’d have had an enso tattoo, yuck.
 
My second tattoo was bigger, had a more sellable story, took longer, was more painful. Third up was a whole arm, ten years later. Mu!! A story told elsewhere, in several parts, my megalomania knows no boundaries.
 
So the last tattoo, with the same artist as Iris. I figured, we just tell her our ideas and see what she comes up with, and put that on our body. I had mailed ahead my idea, being, the letter I in four ways. Inspiration is the most important ingredient for life. The Roman “I” means one, everything is one, like the buddhists say (and the Dalai Lama thinks that it is no joke either). I am always looking for myself, for I. And, duh, Iris is the biggest name in my life. So, four big letters I. Big ideas. Let’s see what she comes up with. Her first dea for Iris was huge, whole arm and part of her chest, so I figured my upward trend of size would go on. And then it beautifully did not. Look what I (heh) got:
 2015-04-19 14.22.02
Clear, isn’t it? Let me zoom in a bit for you.
2015-04-19 14.21.42
It took all of 47 seconds to put on, and I didn’t have time to feel anything. And here is the beauty. That letter i is actually Iris’s. The I of Iris. She drew it and then the artist inked it on me. We left the tattoo shop in a daze, Iris from having a vibrating needle stuck in her ribcage for waytoo long and me from witnessing her immorrtalizing something beautiful (sorry folks, still her story to tell). I did sulk for a bit about the idea of four not really showing up in the tattoo, until I realized that it was my fourth tattoo. Yes, I know. And in the ultimate feat of cognitive dissonance I splattered the idea of the four I’s across every tattoo that I had, because, that oneness, well, mu!!, a bit hard to explain here, but believe me, the connection is there, my third tattoo is the oneness I. Inspiration, it can come from anywhere, and it is realky the most important thing, and you can only find it here and now, making my second tattoo the I for inspiration (yeah, this one is a bit of a stretch). And for my first tattoo, is that not about the i-dentity I was trying to remind myself of? Circling back, to the last tattoo, the I of Iris, and can you actually see that the way she writes the i is pretty similar to a 1? Cognitive dissonance or not, she is my nr.1, or I want her to be, either way, she has to share that spot with Zoe now, and anyway, who else should I look to for inspiration but my wife? Fuck you, ALS, for coming between us, and make this tattoo the hardest one to live. Fuck you. I love you, Iris, and I wish our circumstances where different. Happy 30th birthday. May you enjoy at least fifty more.
http://evenwithals.com/wp-content/uploads/2016/08/even-with-als-logo-300x117.png 0 0 garmt http://evenwithals.com/wp-content/uploads/2016/08/even-with-als-logo-300x117.png garmt2015-04-21 10:56:082015-04-21 10:56:08Tattoo stories part three
Page 23 of 66«‹2122232425›»

Full story

Click to buy!

So here’s the book:

EVEN WITH ALS

(yes it’s all caps!)

Garmt van Soests first book. Part two will follow, later.

EVEN WITH ALS is the overhauled, revised, spellchecked collection of his blogposts. Furnished with more than a hundred footnotes, a foreword, epilogue and an extra appendix. Garmt curses, raves, fights, wins, sighs, cries, breaks, listens, sees, feels and shares. With powerful language and words that strike home, the book expertly punches you in the gut.

So get a move on. With a few simple clicks of a button, a piece of cake for those without ALS, the brand-new book will be making eyes at you from your mailbox in no time.

Convinced? Click here to buy it
Not a fan of paper? Read it all online, here!
I have the book, show me the extra content already.

Voor wie is het boek?

Het boek is uiteraard voor wie gewoonweg geen genoeg krijgt van zijn blog, maar ook voor hen die onder een steen geleefd hebben en pas net op de hoogte zijn van het feit dat er überhaupt zoiets bestaat als de blog van Garmt. Het is ook voor een ieder die inmiddels een muisarm heeft ontwikkeld van het vele doorklikken op de website en natuurlijk voor de vrienden van de oude stempel, die het ouderwets geil vinden om een potje aan ècht papier te snuffelen tijdens het lezen.

ALS DAN TOCH is voor iedereen die Garmt en de stichting ALS een warm hart toedraagt. Want uiteraard gaat de uitgeversopbrengst van het boek naar de stichting ALS. Vooruit, en de royalties gaan naar dochter Zoë. Dus je doet met het kopen van het boek niet alleen jezelf of je moeder een groot plezier, maar maakt tegelijkertijd de wereld een klein beetje mooier.

Win-win.

Zijn beschrijvingen zijn scherp. Geestig. En eerlijk.

Volkskrant

“...wrange humor en stoere vechtlust…”

Algemeen Dagblad

"Een boek waar alles inzit."

Jeroen Pauw

dadablblblblrrrr, die!!!!!??!

Zoe L. van Soest

Join the fight

Hello, dear reader. ALS is currently incurable, but I’ll be fucked if I’m taking this lying down. I’m also trying to be realistic about this, but still, a bit of a battle does a person good every now and then. The fight I’m fighting is summed up pretty neatly here in this video (februari 2014).

There are a few ways you can help out with a small donation:

232Km in 2016

Sponsor James Faust as he participates in 4 races in 4 countries to raise money toward research.

While I swim, bike, and run, you can show your support by donating.

Project Mine

The biggest genome research project known to date. My biggest bet that we’ll find the cause. Once that is known, we at least know what we’re shooting for.

Stichting ALS

Of course, the big constant factor is the Dutch Stichting ALS; they welcome your annual donation; small or big.

Your idea here?

Are you swimming, cooking, cycling or walking against als? do you know someone who is a millionaire and wants to make money? Mail to info@qurit.org or press the button.

Sponsor James Faust
Visit Project Mine
Visit Stichting ALS
Contact Me

My friend who’s really on top of the fight is Bernardus Muller and you can find him on https://twitter.com/BernardusMuller. His twitter feed is the best place to hear what’s going on with ALS. If anything can be done or if we or someone else have managed to achieve something, you’ll hear about it from him first.

Follow the latest updates on ALS

Who?

Garmt van Soest

Garmt van Soest is a versatile manager with a strong background in business strategy and technology. He has advised Fortune 500 companies in the US and Europe since 2000. Garmt joined Accenture in 2010 as a Senior Manager in Strategy where he has been leading engagements in different industries, solving complex problems, advising on strategic direction setting and leading organizational transformation programs. Since his diagnosis with ALS his full-time job is to fight this disease with everything he and Accenture can muster.

Do you have ALS yourself? Click here!

This website was made possible in collaboration with:

Scorpius Webdevelopment
Unleash The Monkey webdesign
Linelle Deunk photography
Hester Doove photographer
Nowsales hosting services
© Copyright - AlsDanToch | Credits
Scroll to top